How to access NWL Health Research Register

How to access NWL Health Research Register

NWL Health Research Register is available to academic and NHS researchers in North West London. The researcher must either be employed or sponsored by an Information Sharing Agreement (ISA) signatory (please see list below) 

If you are a commercial organisation and would like to utilise NWL Health Research Register services you must be working in partnership with one of our local researchers. If you don’t have a local partner we can work to facilitate this for you.

Step 1

Please download the relevant application form below and submit to researchers@registerfordiscover.org.uk. You will need to submit ethical approval (where required) and R&D approval alongside your application.

Step 2

The NWL Health Research Register Team will review your application with you to ensure the requirements are possible and agree the analytical services required. A price for the service and a schedule for delivery will be provided (pending approval of the application).

Step 3

The application is then submitted to the monthly NWL Health Research Register Research Access Group for consideration and approval.

Step 4

Once approved, the NWL Health Research Register Team will deliver the request.

North West London ISA Hospital Signatories

  • Central and North West London NHS Foundation Trust
  • London North West University Healthcare NHS Trust
  • West London Mental Health NHS Trust
  • Central London Community NHS Healthcare NHS Trust
  • Chelsea and Westminster NHS Foundation Trust
  • Imperial College Healthcare NHS Trust
  • The Hillingdon Hospital NHS Foundation Trust
  • The Royal Brompton Hospital Trust

The ISA also covers data from eight local authorities and most of the 372 GP practices of North West London.

Downloads

  • Discover Data Access Process Flow

    This diagram presents the process for researchers who want to access the Discover dataset and its built in consent via the NWL Health Research Register

    Uploaded on: 13 May 2021
  • NWL Health Research Register Feasibility Application Form

    This is the application form for North West London NHS and academic researchers to apply to run a feasibility study in North West London.

    Uploaded on: 13 May 2021
  • NWL Health Research Register Cohort Recruitment Application Form

    This is the application form for North West London NHS and academic researchers access to apply to run clinical or real world evidence studies, utilising the de-identified data from the WSIC linked data set.

    Uploaded on: 13 May 2021
  • NWL Health Research Register Retrospective Study Application Form

    This is the application form for North West London NHS and academic researchers top apply for access to run retrospective studies on de-identified data from the WSIC linked data set.

    Uploaded on: 13 May 2021
  • Data Access Guidelines

    These guidelines set out the application process for researchers who want to use NWL Health Research Register, including eligibility criteria and the application review checklist. These guidelines can be used to help inform your application to Health Research Register.

    Uploaded on: 13 May 2021
  • Terms of Reference

    Terms of Reference (ToR) - North West London Data Access Sub-group

    The Data Access Group acts as a sub-group to the NW London Digital Information Governance Board and has thus far been delegated responsibility to oversee data flows, cyber security and access to data requests (both service evaluation and research studies/projects).

    Uploaded on: 13 May 2021