Causes & Partners
NWL Health Research Register has been set up to bridge the gap in North West London between members of the public and health researchers.
To fulfil the potential of NWL Health Research Register we need to understand and address the health needs of our local population. In order to do this we work in collaboration with NHS and university partners, leading charities, patients and community groups.
Through analysing NHS health and social care data and working with our partners we are aware that the following health conditions are prominent within our population in North West London:
-Heart disease and stroke
At the same time as addressing these and other conditions, we also acknowledge that people often suffer from multiple conditions. In addition as well as helping to improve treatment the research work we support needs to address prevention and health promotion.
Diabetes UK have a representative on the NWL Health Research Register Steering Group which enables them to influence our strategy. We have also collaborated in terms of raising awareness of NWL Health Research Register through the charity’s network and in developing our approach to diabetes research.
We work in collaboration with the Association of Medical Research Charities to further our understanding of the challenges and opportunities that research charities face. We also work with AMRC to gain understanding and form collaborations related to specific diseases.
Bowel Cancer Research have a representative on the NWL Health Research Steering Group which enables them to influence our strategy. We have also collaborated in terms of raising awareness of NWL Health and Research Register through the charity’s network.
We work closely with NIHR to identify our research priorities for the benefit of our local population as well as collaborating on helping raise the profile of NWL Health Research Register and increase the number of people signed up to the register.
We have worked closely with NWL CCG during the set-up of NWL Health Research Register and continue to work with the CCG to align our work with the those of our NHS partners, in particular to make sure we our prioritising research related to the health needs of North West London.
The Care Information Exchange (CIE) uses a computer system provided by Patients Know Best. Registering with CIE gives you access to your hospital records. You can share your care record with your family, carers, GP and other health professionals if you wish to. Your information is shared in the secure NHS network.