Discover for Researchers

What is Discover?

A register of patients who have consented to be contacted about research opportunities that are relevant to them. The intention is to radically improve the way we recruit to studies and ensure that our partners are able to recruit their target numbers, to time. If you are a researcher and have any queries, you can contact us on researchers@registerfordiscover.org.uk

We also send out a e-newsletter for researchers. Join our mailing list here to hear all the latest news from the programme!

Why have we set up Discover?

North West London has a buoyant research landscape with prestigious universities, innovative hospital trusts, an engaged primary care sector and most importantly, a diverse population. We also carry out a lot of research in North West London, however this is not without its challenges. 

Challenge 1

Under the NHS Constitution, all patients should be given the opportunity to participate in studies which are relevant to them. Locally our approach is a postcode lottery, with patient participation depending on which hospital or GP practice they are being treated by.

Challenge 2

Understanding how many patients exist who fit study criteria and may want to participate in a study is almost
impossible, leaving us guessing at study feasibility.

Challenge 3

Our recruitment methods are rudimentary and time consuming. Study recruitment can take a long time, and recruiting a sufficient number of patients quickly is difficult.

Challenge 4

We are not currently harnessing the power of our local patient data to enable innovative research and delivery of life changing patient outcomes.

What can Discover offer?

Discover seeks to address these research challenges in North West London and has been developed by Imperial College Health Partners (ICHP), the Academic Health Science Network (AHSN) for North West London.

ICHP is a partnership organisation of nine NHS Trusts, three universities (Imperial College, Brunel University and Buckinghamshire New University) and eight Clinical Commissioning Groups from across North West London, all of whom have access to Discover.

Discover provides a number of products and services to our NHS and academic research community:

Discover Health Research Register for North West London

A register of patients who have consented to be contacted about research opportunities that are relevant to them. The intention is to radically improve the way we recruit to studies and ensure that our partners are able to recruit their target numbers, to time.

Feasibility Dashboard

This is a self-service dashboard which allows users to ask simple study feasibility questions, to support study design in North West London. 

Analytical Offerings

The real power of Discover is the linked integrated patient level data. The data which Discover uses is drawn is from the Whole Systems Integrated Care dataset (WSIC). This is one of the most powerful data sets in the UK, containing linked coded data from primary care, secondary care, community, mental health and social care. Most of the 372 GP practices in North West London have subscribed to WSIC which contains the patient pathways and records of over 2.2 million patients in North West London.

Using this data, we are delighted to be able to provide a number of fantastic research offerings to our local research community:

  • Retrospective studies
  • Real world evidence studies
  • Observational studies

Downloads

  • Researchers leaflet

    Researchers leaflet

    This is the downloadable leaflet for researchers, which gives more information about what Discover offers.

    Uploaded on: 25 May 2018
  • Data dictionary

    Data dictionary

    This is the data dictionary for the WSIC database, describing its contents, format and structure.

    Uploaded on: 8 October 2018