Register hits volunteer signup milestone

North West London Health Research Register hits volunteer signup milestone

North West London Health Research Register hits volunteer signup milestone image
  • 17th April 2020

Our voluntary register for people in north west London who want to get involved in health research has hit a signup milestone of now over 6,000 people.

The North West London Health Research Register helps match health researchers with volunteers from the community, to find new and innovative ways to treat and manage illnesses.

Anyone above the age of 18, who is registered with a GP in north west London, can join the register, and has now had over 6,000 members sign up, just over two years since the register launched.

Programme Director Amanda Lucas said: “Reaching 6,000 members on the North West London Health Research Register is a great milestone for us and will allow us to enable important research studies to improve healthcare for the population.

“However, with a population of more than 2.6 million people in north west London, we want to use this momentum to encourage more and more people to join and help us make a difference.”

Often people who want to contribute to health research don’t know where to start or who to ask. Researchers have a similar problem – they want to improve healthcare, but sometimes can’t find people to participate in studies.

The North West London Health Research Register is a way to bridge this gap, bringing the public and researchers together through an ever-growing consent register. Through consenting to join the register, patients and the public are able to get involved with research studies that could contribute to a healthier future for everyone.

Should a researcher want to carry out a study with people of a certain age, or with a certain condition, then the North West London Health Research Register team can contact volunteers on the register who fit the criteria and offer them the chance to take part. Privacy is extremely important to the NHS, and identifiable health data will never be viewed without a person’s consent.

The North West London Health Research Register has a rigorous feedback process, meaning that any participants who take part in trials are always kept in the loop, with evaluations and feedback provided, allowing you to see exactly how you have helped contribute to life-saving research.

Each health research study is unique and can range from participating in surveys to having your blood tested, to testing new medical devices and phone apps and sometimes participating in clinical trials. Not all involve drug or medical intervention and may instead be more interested in lifestyle and environmental factors.

One of the register’s latest approved research project is looking at Chronic Obstructive Pulmonary Disease (COPD), also known as emphysema. Volunteers for this study will get the chance to be treated at the Royal Brompton Hospital, which is globally renowned for treating lung and heart disorders.

You do not have to have an existing condition or illness to join the register – health research needs volunteers of all shapes and sizes – and once you have signed up there’s no obligation to take part in any specific research; you can say no at any time. If you’re interested in joining, simply visit www.registerfordiscover.org.uk/join-today 

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